My wonderful girlfriend Melissa and her sweet hubby Tyler will be stripping down to their skivvies in the freakin freezing cold this February to raise money in "Cupid's Undie Run" so kids like Sophia, their daughter's good friend, can grow up happy and healthy.
Sophia was diagnosed with Neurofibromatosis (NF1) in February 2014. At the beginning, her family was often asked how they knew that something was wrong. They didn’t. Sophia is the perfect end piece to the family's three stepping stone children who all live in Mint Hill, NC. The littlest of the children, Sophie is wild and in to everything, full of energy and smiles and giggles from sun up to long past bedtime. As far as her parents were concerned she was doing just as well as her brothers developmentally and they had absolutely no concerns about her future. Since her diagnosis, all they know is that her future is uncertain.
Sophia’s journey is just beginning. Many trips to the doctor, although important, have been scary for Sophia and her family. All of these doctor visits leave them with uncertainty and without answers. For her family a diagnosis of Neurofibromatosis means a future that is clouded with doubt and worry.
NO CHILD SHOULD HAVE TO GO THROUGH THIS and we cannot stop until there is a cure for NF so that kids like Sophie can stop being afraid and her family can live a day without worry.
You can help by donating or joining our team of undie-clad runners. Your donation will provide critical funding that will allow for treatments, clinical trials and ultimately will fund the research to find a cure for NF.
Donate to support Sophia and kids like her here.
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